WELCOME to the Mucosal Melanoma Warriors website

As a partner with the Mucosal Melanoma Warriors Foundation, this site was created by MM patients for MM patients and their caregivers. We have put together the kind of internet tool that many of us wish had been available when we were diagnosed.
Our goal is to provide you with HOPE as you read the stories and search the RESOURCES to learn more about Mucosal Melanoma.
You are invited to spend some time reading through the various pages and tabs on this website. If you have any questions after visiting the site, we welcome you to Contact Us.

Meet some of our Warriors

  • Diagnosed in 2015 with Stage 4 Sinonasal Mucosal Melanoma
  • Surgery with clean margins followed by radiation
  • Metastases to brain, lungs and kidney in 2016
  • Received Keytruda and Opdivo/Yervoy immunotherapies with no response, Gamma Knife radiation to brain with positive response
  • Accepted into Iovance clinical trial for TIL (Tumor Infiltrating Lymphocytes) Therapy in 2018
  • Received TIL therapy April 2018 - No evidence of disease October 2018
  • Continue to be cancer-free  

Toni Operations Warrior

  • In May 2022 I was diagnosed with inoperable Stage 3c Anorectal Mucosal Melanoma. At the time scans of brain, abdomen, pelvis June were clean.
  • I began treatment in June 2022 in a clinical trial at MSKCC (NCT05384496) involving twice daily oral Axitinib + monthly infusions of nivolumab (Opdivo).
  • September 2022 imaging showed that my primary tumor was stable but that I had metastasis to the liver.
  • In October, 2022 I was advanced to “triplet" therapy on the trial, which added ipilimumab (Yervoy) infusions to my regimen and increased the frequency of infusions to every 3 weeks.
  • I have had some bumps along the way, such as immune-related hepatitis and hypothyroidism, but everything has been manageable with medication or modification of treatment regimen.
  • Throughout this journey, I have managed to stay active most days. I truly believe that movement is medicine. I have run 3 charity 5Ks since June and am hoping to run a 10K or ½ marathon in the spring.

Anna Research Warrior

Contributor Testimonials

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